Recovery interview with Positively Covid
The tables were turned yet again for me as I became the interviewee for the lovely Amy at Positively Covid about my Long Covid recovery.
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I interviewed Amy a while back about her own recovery story, so it was lovely to let her return the favour, as well as to spend ages just catching up on life! You can hear the original interview here
Long Covid Breathing
As I've detailed in several of the episodes, breathing was the first thing - and one of the most important - that I found to help me on my Long Covid recovery journey.
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I've joined together with Vikki Jones to bring you Breathing for Long Covid - courses specifically designed for people with Long Covid. We have taken the trial & error out of the equation and will teach you only the things that are appropriate for you - and how to know which ones to do, when & for how long.
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You can find more information & sign up for our January courses here
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And sign up for our free webinar on Dec 4th here
Long Covid Creativity 2023
Each year I do a Long Covid Creativity episode, to showcase the incredible creativity of those with long Covid & chronic illness. A real way of making something beautiful out of something horrible.
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I have some exciting things lined up already for this year's episode - if you are a creative and would be interested in being part of this, then please let me know! You can contact me through the website (form at the bottom of the page), the email address to the left, or through socials.
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Previous episodes here for reference:
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Deadline - 4th Dec
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New Interview - 14/11/23
The tables were turned and I was put on the other side of the microphone as Lorna interviewed me about my recovery for her channel recently.
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Lorna and I first connected a few years ago, and you can see me put her through her paces in this episode if you'd like to know more about her story with PoTS.
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It was lovely to reconnect - thanks Lorna!
This is now a news page!
This will absolutely include research studies - so if you are a researcher, or know of a research study that is currently recruiting - please do message me the link - you can use the "contact" form at the bottom of the webpage and I'll add it to the page.
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If you see other exciting news or opportunities, then please send me them too.
Research Involvement
Have a listen to Jane Ormerod & Chris White from Long Covid Scotland chat about research involvement - how they have been getting involved and also the huge benefits to both parties of patients being involved in research.
If you are in Scotland, get in touch with Long Covid Scotland to get involved in their research group.
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If you are in the rest of the UK, join the Facebook Research Involvement Group or get in touch via the Long Covid Support website
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Elsewhere in the world? Get in touch and I'll direct you!
Current Research Studies
Please get in touch directly with the studies (or get in touch with me if you're stuck!)
Clinical Trial - La Jolla & Consuli
Clinical Trial for Long COVID with Neurological Symptoms
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Location: La Jolla Institute for Immunology, San Diego, CA
More information HERE
Clinical trial of AXA1125
More information about the trial HERE
Clinical trial of AXA1125, a therapeutic for the restoration of mitochondrial dysfunction. This is related for Long Covid-related fatigue and PEM.
The trial is being run out of Oxford University Hospitals. They are still looking for participants.
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They will do several scans on different organs too - which may be helpful for you for other reasons.
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If you have diagnosed Long Covid and were NOT hospitalised and are interested - email pasc@cardiov.ox.ac.uk
Long Covid & Women's reproductive health
Cognitive Linguistic Difficulties in adults with Long Covid
Louise Cummings is doing more research into adults with cognitive & linguistic difficulties and Long Covid.
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This survey can be completed in 15 minutes by adult Long Covid sufferers in any country.
Long Covid Pacing Study
Using activity tracking and just-in-time messaging to help with Pacing
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Information & ways to get in touch HERE
TraPSS - have you had a recent Positive test?
Both of these studies are featured on this episode of the podcast.
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TraPSS - go to 4 minutes in
Pacing - go to 22 minutes
This study tracks symptoms following a positive test and will help to track symptoms, who gets Long Covid & lots of other useful information.
Get in touch HERE
