Long Covid Research
Are you interested in getting involved in research into Long Covid?
There are a number of different ways to get involved. If you are interested in taking part in research studies as a participant - I will try to keep this page up to date with studies that are currently recruiting.
Researchers are also always looking for people to get involved in the set up of research projects - as part of Patient Participation Groups - this gives you the option to influence and really help the research project to be as good as it can be.
Research Involvement
Have a listen to Jane Ormerod & Chris White from Long Covid Scotland chat about research involvement - how they have been getting involved and also the huge benefits to both parties of patients being involved in research.
If you are in Scotland, get in touch with Long Covid Scotland to get involved in their research group.
If you are in the rest of the UK, join the Facebook Research Involvement Group or get in touch via the Long Covid Support website
Elsewhere in the world? Get in touch and I'll direct you!
Current Research Studies
Please get in touch directly with the studies (or get in touch with me if you're stuck!)
Clinical Trial - La Jolla & Consuli
Clinical Trial for Long COVID with Neurological Symptoms
Location: La Jolla Institute for Immunology, San Diego, CA
More information HERE
Clinical trial of AXA1125
More information about the trial HERE
Clinical trial of AXA1125, a therapeutic for the restoration of mitochondrial dysfunction. This is related for Long Covid-related fatigue and PEM.
The trial is being run out of Oxford University Hospitals. They are still looking for participants.
They will do several scans on different organs too - which may be helpful for you for other reasons.
If you have diagnosed Long Covid and were NOT hospitalised and are interested - email pasc@cardiov.ox.ac.uk
Long Covid & Women's reproductive health
Cognitive Linguistic Difficulties in adults with Long Covid
Louise Cummings is doing more research into adults with cognitive & linguistic difficulties and Long Covid.
This survey can be completed in 15 minutes by adult Long Covid sufferers in any country.
Long Covid Pacing Study
Using activity tracking and just-in-time messaging to help with Pacing
Information & ways to get in touch HERE
TraPSS - have you had a recent Positive test?
Both of these studies are featured on this episode of the podcast.
TraPSS - go to 4 minutes in
Pacing - go to 22 minutes
This study tracks symptoms following a positive test and will help to track symptoms, who gets Long Covid & lots of other useful information.
Get in touch HERE
